This bill — known as the Childhood Cancer STAR Act — would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, and enhance quality of life for childhood cancer survivors. It would reauthorize the national cancer registry through fiscal year 2023 and allow the Centers for Disease Control and Prevention to award grants to state cancer registries to improve tracking of childhood cancers. Research funding would total $30 million annually through fiscal year 2023.
The Dept. of Health and Human Services (HHS) would be authorized to:
Support pilot programs to develop or study modals for monitoring and caring for childhood cancer survivors throughout their lives;
Establish a task force to develop and test standards for high-quality childhood cancer survivorship care;
Carry out a demonstration project to improve care coordination as childhood cancer survivors transition to adult care.
The National Institutes of Health would be authorized to support research on:
Outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations;
Follow-up care for pediatric cancer survivors, including research on the late effects of cancer treatment and long-term complications.
HHS would be required to convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors. The Government Accountability Office (GAO) would be required to make recommendations to address barriers to childhood cancer survivors obtaining and paying for adequate medical care.
The bill’s full title is the Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2017.