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bill Progress


  • EnactedJune 5th, 2018
    The President signed this bill into law
  • The house Passed May 22nd, 2018
    Passed by Voice Vote
      house Committees
      House Committee on Energy and Commerce
      Health
  • The senate Passed March 22nd, 2018
    Passed by Voice Vote
      senate Committees
      Senate Committee on Health, Education, Labor, and Pensions
    IntroducedFebruary 2nd, 2017

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What is it?

This bill — known as the Childhood Cancer STAR Act — would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, and enhance quality of life for childhood cancer survivors. It would reauthorize the national cancer registry through fiscal year 2023 and allow the Centers for Disease Control and Prevention to award grants to state cancer registries to improve tracking of childhood cancers. Research funding would total $30 million annually through fiscal year 2023.

The Dept. of Health and Human Services (HHS) would be authorized to:

  • Support pilot programs to develop or study modals for monitoring and caring for childhood cancer survivors throughout their lives;

  • Establish a task force to develop and test standards for high-quality childhood cancer survivorship care;

  • Carry out a demonstration project to improve care coordination as childhood cancer survivors transition to adult care.

The National Institutes of Health would be authorized to support research on:

  • Outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations;

  • Follow-up care for pediatric cancer survivors, including research on the late effects of cancer treatment and long-term complications.

HHS would be required to convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors. The Government Accountability Office (GAO) would be required to make recommendations to address barriers to childhood cancer survivors obtaining and paying for adequate medical care.

The bill’s full title is the Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2017.

Impact

People diagnosed with children and those close to them; federal agencies, particularly NIH, the CDC, and HHS.

Cost

The CBO estimates that enacting this bill would cost $128 million over the 2019-2023 period.

More Information

In-Depth: Sponsoring Sen. Jack Reed (D-RI) introduced this bill to advance pediatric cancer research, improve surveillance of childhood cancer, and provide resources for survivors and those impacted by childhood cancer:

“With far too many children’s lives tragically cut short by cancer, it’s critical that we do all we can to help the brave young people who are fighting these battles. The Childhood Cancer STAR Act will bring needed assistance to children with cancer and their families by expanding opportunities for research on childhood cancer and providing new strategies to help survivors overcome late health effects, such as secondary cancers. It is my hope that these efforts will lead to life-saving treatments for children and bring us closer to the ultimate goal of ending pediatric cancer one and for all.”

Original cosponsor Sen. Shelley Moore Capito (R-WV) added:

“We must continue making these advancements that can help save the lives of those battling childhood cancers. The Childhood Cancer STAR Act will contribute to new developments in research and treatment, and has the potential to positively impact tens of thousands of lives. I’m proud to reintroduce this very important legislation for patients and families in West Virginia and across the country.”

This legislation passed the Senate Health, Education, Labor, and Pensions Committee on a voice vote before passing the Senate as a whole unanimously. It has the support of 55 bipartisan cosponsors in the Senate, including 32 Democrats, 21 Republicans, and two Independents.


Media:

Summary by Eric Revell

(Photo Credit: AgFang / iStock)

AKA

Childhood Cancer STAR Act

Official Title

A bill to maximize discovery, and accelerate development and availability, of promising childhood cancer treatments, and for other purposes.

    I strongly support solid funding for research into cancer treatments along with research into numerous other horrible medical conditions. However we do need to keep an eye on the people who are receiving this funding because misuse of government funds has become widespread. With the amount of resources America has at its disposal we should be making greater medical leaps than we currently are.
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    How is this even a question?? What have we become?
    Like (12)
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    Budget dust. Go for it. Who is the asshole that will vote no on this? However, it doesn’t stop the need for a universal single payer healthcare system. All the research in the world won’t help if people can’t afford the price of healthcare.
    Like (8)
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    Additionally, congress should make health the universal right it already is.
    Like (6)
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    Why would even be a question. This can only be a resounding YES!!! Are the Republicans so mean hearted that they wouldn’t continue funding for medical research of ANY KIND, let alone for CHILDREN would theyy??!!
    Like (4)
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    This bill would lead to better childhood cancer treatments, improve our understanding of the disease, and provide resources for its survivors. It should absolutely be supported.
    Like (4)
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    This bill shouldn’t expand the authority of federal agencies to conduct research. The introduction of the Government artificially depresses innovation in the private sector. There are many organizations that are privately fund that would pay for all of this research and more. People are willing to donate to this cause as it provides value to society. We need to depend on each other to step in and drive the innovation in things like cancer research instead of depending on the government who has shown time and time again to be poor stewards of our tax dollars.
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    We pretty well know that a lot of cancer is caused the the chemicals
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    By all means yes we should need and take all steps to protect our children.
    Like (3)
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    If his kids had cancer he would want this research. Oh I forgot, he will take them to Europe for the best treatment. Like Cheney who moved ahead on the heart transplant list yet his heart is wax cold! Funny how corrupt politicians make decisions over our lives while doing the exact opposite. By the way. It is NOT a waste of money getting to the truth on interference in our election. If this president,cabinet, family and friends are committing treasonous acts. AMERICA NEEDS TO KNOW. NEVER HAVE WE HAD A PRESIDENT SLIME OUR NATIONAL SECURITY, appoint corrupt inexperienced people and interfere in his own investigation UNCHECKED! WHERE IS YOUR OUTRAGE!!! Republicans would have been in front of EVERY MIC AVAILABLE INSTEAD THE CORRUPT ARE DOING IT WHILE OUR DEMS REMAIN SILENT PROTECTING THEIR JOBS INSTEAD OF THIS COUNTRY!!!
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    Yes to this bill AND ensure that no government office can forbid NIH, or any of their contractors or grant recipients, from reporting on certain subjects or using certain language
    Like (2)
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    Yes, I support this bill. Reauthorize and expand resources. No one could be opposed to providing support for those who live with cancer, right. I will be watching 👀 this bill. Who will vote no?! 👀
    Like (2)
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    I'm never a fan of government burocracy.
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    Yes it’s 1 step closer to a cure for cancer or at least a treatment to reduce the effects
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    All cancers are tragic, but childhood cancer is particularly heartrending. Like all cases we need to make sure we study childhood cancers closely and help curb the incidence rate.
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    Childhood cancer is greatly underfunded
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    This commonsense, bipartisan bill would authorize research that will lead to better child-focused cancer treatments, improve tracking of childhood cancer incidences, and provide additional resources for survivors of, and those impacted by, childhood cancer.
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    I think the funding should go to entities which already have much of the required facilities and materials in place, such as St. Judes Research Hospital.
    Like (1)
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    You would want this for your child. So let’s pass it
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    There should be no question on this vote. We must appropriate funds to this very important issue.
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