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bill Progress


  • EnactedDecember 18th, 2014
    The President signed this bill into law
  • The senate Passed November 20th, 2014
    Passed by Voice Vote
      senate Committees
      Senate Committee on Health, Education, Labor, and Pensions
  • The house Passed September 9th, 2014
    Passed by Voice Vote
      house Committees
      House Committee on Energy and Commerce
      Health
    IntroducedFebruary 13th, 2013

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What is it?

This bill would increase research and data collection on Sudden Unexplained Infant Death (SUID) and Sudden Unexplained Death in Childhood (SUDC).

The “Sudden Unexpected Death Data Enhancement and Awareness Act” would amend the Public Health Service Act by adding several new requirements to the law, requiring: 

  • The Director of the Centers for Disease Control and Prevention (CDC) to establish a general protocol for autopsying children after such deaths.
  • The CDC director to organize a study on the appropriateness of genetic testing on children who suffer from SUID or SUDC.
  • The Secretary of Health and Human Services (HHS) secretary to award grants to states that investigate cases of SUID and SUDC. HHS would also have to modify their reporting system, so that root causes of the syndromes can be be better understood.
  • The HHS to provide better public education and prevention programs that would reduce stillbirths and address the racial and ethnic disparities of the syndromes.

Impact

Children up to the age of four, Health and Human Services (HHS), Centers for Disease Control and Prevention, and The Health Resources and Services Administration (HRSA).

Cost

A CBO cost estimate found that because the changes are minimal compared to what the law already requires, the costs associated with H.R. 669 are insignificant.

More Information

In Depth:

Sudden Unexpected Death Syndrome (SUDS) is a very rare syndrome in which infants and children experience cardiac arrest.  The syndrome is the leading cause of death for one year old children. The CDC says that the syndrome kills 4,000-4,500 babies a year for reasons that are unclear. H.R. 669 is an effort figure out more information about how and why SUDS occurs.

Media:

Sponsoring Rep. Frank Pallone (D-NJ) Press Release

PolitikerNJ

The Hill

(Photo Credit: Wikipedia)

AKA

Sudden Unexpected Death Data Enhancement and Awareness Act

Official Title

A bill to improve the health of children and help better understand and enhance awareness about unexpected sudden death in early life.

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