This bill would amend the Public Health Services Act to revise and expand the National Institutes of Health (NIH) muscular dystrophy research program. Specifically, H.R. 594 would increase the types of muscular dystrophy researched by the NIH, and ensure that NIH shares new data with other muscular dystrophy research centers. The Center for Disease Control would be responsible for gathering data on different population groups affected by muscular dystrophy.
- EnactedSeptember 26th, 2014The President signed this bill into law
- The senate Passed September 18th, 2014Passed by Voice Vote
- The house Passed July 28th, 2014Passed by Voice Vote
House Committee on Energy and CommerceHealthIntroducedFebruary 8th, 2013
- house Committees
What is it?
A second part of this bill outlines measures to bolster the
effectiveness of the Muscular Dystrophy Coordinating Committee (MDCC).
In addition to conducting studies on independent living programs and
clinical treatment, the MDCC would evaluate new forms of therapy that
could mitigate the harm caused by muscular dystrophy.
(Photo Credit: Wikimedia user Dr. Edwin P. Ewing, Jr)