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house Bill H.R. 594

Expanding Research on Muscular Dystrophy

Argument in favor

Strengthens research that could dramatically increase the lives of more than 100,000 individuals living with muscular dystrophy.

Argument opposed

Excessive funding for what amounts to data sharing between research programs.

bill Progress

  • EnactedSeptember 26th, 2014
    The President signed this bill into law
  • The senate Passed September 18th, 2014
    Passed by Voice Vote
  • The house Passed July 28th, 2014
    Passed by Voice Vote
      house Committees
      Committee on Energy and Commerce
    IntroducedFebruary 8th, 2013

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What is House Bill H.R. 594?

This bill would amend the Public Health Services Act to revise and expand the National Institutes of Health (NIH) muscular dystrophy research program. Specifically, H.R. 594 would increase the types of muscular dystrophy researched by the NIH, and ensure that NIH shares new data with other muscular dystrophy research centers. The Center for Disease Control would be responsible for gathering data on different population groups affected by muscular dystrophy.


People with muscular dystrophy, the National Institute of Health, and the Center for Disease Control.

Cost of House Bill H.R. 594

$323.00 Million
The CBO estimates this cost based on H.R. 594's requirement to increase the scope of research by the National Institutes of Health and the Centers for disease Control and Prevention to include additional forms of muscular dystrophy. The cost also comes from the re-authorization of previous surveillance, research and education measures related to the disease.

More Information

In Depth:

A second part of this bill outlines measures to bolster the effectiveness of the Muscular Dystrophy Coordinating Committee (MDCC). In addition to conducting studies on independent living programs and clinical treatment, the MDCC would evaluate new forms of therapy that could mitigate the harm caused by muscular dystrophy.


Rep. Michael Burgess Press Release

Political News

(Photo Credit: Wikimedia user Dr. Edwin P. Ewing, Jr)


Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Official Title

To amend the Public Health Service Act relating to Federal research on muscular dystrophy, and for other purposes.

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